Living with Lou: Dudley Clendinen on a Good, Short Life
Dudley Clendinen, an award-winning author and journalist, was living in Baltimore when he was diagnosed in November 2010 with Amyotrophic lateral sclerosis, or ALS (also known as Lou Gehrig’s disease). A former reporter and editorial writer for The New York Times, Dudley wanted to share his experience with “Lou,” as he called the disease, with others.
From February 2011 through January 2012, Dudley spoke regularly with Tom Hall about the disease’s symptoms, his mental state, and preparing for the end of life. Dudley passed away on May 30, 2012, in hospice care at the Joseph Richey House in Baltimore. He was 67 years old.
6.4.12: Remembering Dudley Clendinen
5.31.12: Dudley Clendinen, 1944 – 2012
1.3.12: A Conversation That Will Go On 12.12.11: A Noisy Body 11.28.11: The Chance to Tell a Story 11.14.11: To Be Remembered 10.31.11: To Be Honest 10.17.11: To Be Flawed 10.3.11: Dealing with Condescension
9.19.11: To Be Responsible
9.6.11: The Thing That Might Not Work
5.30.11: The Time Leading Up to It
5.17.11: A Professional Background
5.2.11: The Physical Effects of ALS
3.21.11: Preparation for Illness
3.7.11: Considering Others
2.21.11: Dealing with Diagnosis
About Dudley Clendinen
Dudley Clendinen worked as a reporter and editorial writer for The New York Times. His books included Out for Good: The Struggle to Build a Gay Rights Movement in America, on the evolution of the gay rights movement, beginning with the Stonewall riots of 1969. He’s also the author of A Place Called Canterbury: Tales of the New Old Age in America, which details the story of his mother’s time in the Canterbury Tower in Florida, where the average occupant is 86 years old. He is editor of a book of essays, The Prevailing South, and author of the text for a book of photographs, Homeless in America.
Further Conversations about ALS
7.26.11: A Professional Athlete with ALS
7.25.11: Options at the End of Life
Dealing with Terminal Illness
We also want to involve YOU in the conversation. Are you, or is someone you know, dealing with a terminal illness? What has been helpful to you as you’ve dealt with this? Are there particular books or websites that have been useful? What about organizations? How do you to talk to people about it? Or is it something that you mainly keep to yourself?
We’ve gathered a series of resources below, but we’d love to hear your additions.
Let us know your thoughts at firstname.lastname@example.org, leave a comment below, or give us a call at 410-881-3162.
Books and Journalism
I Remember Running: The Year I Got Everything I Ever Wanted – and ALS by Darcy Wakefield
The Diving Bell and the Butterfly: A Memoir of Life in Death by Jean-Dominique Bauby
“The Cancer Report” in the Columbia Journalism Review
NPR’s Patricia Neighmond’s series of reports on Archie Harrison, who was diagnosed with AIDS in the late 80s
A Still Life…A Life Still — the writings of two friends, each of whom is caring for a parent with ALS