Living with Lou: Dudley Clendinen on a Good, Short Life
February 21, 2011 at 8:00 am
Dudley Clendinen and Tom Hall in the WYPR studios in October 2011. Photo by Stephanie Hughes.
Dudley Clendinen, an award-winning author and journalist, was living in Baltimore when he was diagnosed in November 2010 with Amyotrophic lateral sclerosis, or ALS (also known as Lou Gehrig’s disease). A former reporter and
editorial writer for The New York Times, Dudley wanted to share his experience with “Lou,” as he called the disease, with others.
From February 2011 through January 2012, Dudley spoke regularly with Tom Hall about the disease’s symptoms, his mental state, and preparing for the end of life. Dudley passed away on May 30, 2012, in hospice care at the Joseph Richey House in Baltimore. He was 67 years old.
Remembering Dudley Clendinen
Dudley Clendinen, 1944 – 2012 http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-1013136.mp3
A Note on Dudley Clendinen 3.7.12: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-1013087.mp3 An Update 1.30.12: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-1005854.mp3 I Wouldn’t Have Missed It A full transcript of this conversation is available here.
The Body is Going Out http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-1000032.mp3 A full transcript of this conversation is available here.
A Conversation That Will Go On 12.12.11: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-998750.mp3 A Noisy Body http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-996875.mp3 11.28.11: The Chance to Tell a Story 11.14.11: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-995107.mp3 To Be Remembered http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-993630.mp3 10.31.11: To Be Honest 10.17.11: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-991998.mp3 To Be Flawed 10.3.11: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-990190.mp3 Dealing with Condescension http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-988515.mp3
To Be Responsible
The Thing That Might Not Work
A Wonderful Life http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-982878.mp3 8.8.11: A Good Death 7.25.11: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-981287.mp3 A Legacy Worth Attempting http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-978958.mp3 7.11.11: Living with Integrity 6.24.11: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-977050.mp3 The Idea of Being Compromised http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-975083.mp3 6.13.11: The Mechanics of ALS
5.30.11: http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-973067.mp3 The Time Leading Up to It http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-971123.mp3
A Professional Background http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-968989.mp3
The Physical Effects of ALS http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-967000.mp3
A Matter of Priorities http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-963819.mp3 4.4.11: The Freedoms of Terminal Illness http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-961340.mp3
Preparation for Illness
2.21.11: Dealing with Diagnosis
About Dudley Clendinen
Dudley Clendinen worked as a reporter and editorial writer for
The New York Times. His books included on the evolution of the gay rights movement, beginning with the Stonewall riots of 1969. He’s also the author of Out for Good: The Struggle to Build a Gay Rights Movement in America, , which details the story of his mother’s time in the Canterbury Tower in Florida, where the average occupant is 86 years old. He is editor of a book of essays, A Place Called Canterbury: Tales of the New Old Age in America , and author of the text for a book of photographs, The Prevailing South Homeless in America.
The writer Dudley Clendinen, with his daughter, Whitney, in 2007.
Further Conversations about ALS
A Professional Athlete with ALS
Options at the End of Life http://stream.publicbroadcasting.net/production/mp3/wypr/local-wypr-978957.mp3
Dealing with Terminal Illness
We also want to involve YOU in the conversation. Are you, or is someone you know, dealing with a terminal illness? What has been helpful to you as you’ve dealt with this? Are there particular books or websites that have been useful? What about organizations? How do you to talk to people about it? Or is it something that you mainly keep to yourself?
We’ve gathered a series of resources below, but we’d love to hear your additions.
Let us know your thoughts at firstname.lastname@example.org, leave a comment below, or give us a call at 410-881-3162.
Books and Journalism
by Darcy Wakefield I Remember Running: The Year I Got Everything I Ever Wanted – and ALS
by Jean-Dominique Bauby The Diving Bell and the Butterfly: A Memoir of Life in Death
who chronicled his battle with ALS in The writings of journalist Brian Dickinson, The Providence Journal
in the Columbia Journalism Review “The Cancer Report”
NPR’s Patricia Neighmond’s
who was diagnosed with AIDS in the late 80s series of reports on Archie Harrison,
— the writings of two friends, each of whom is caring for a parent with ALS A Still Life…A Life Still
, by Baltimore native Barbara Brenner, who has ALS, and uses a technology called NeoKate to communicate. Her essays are periodically broadcast on I Have a Voice KQED in San Francisco.
The ALS Association
The World Federation of Neurology
Entry filed under:
Health, On Air. Tags: ALS, end of life care, Lou Gehrig's disease, terminal illness.